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(This the story of one of the site's authors)
I am not going to bore you with all the details of my
early IC days. You all know what it is like. I will say that I have not
been symptomatic very long, although it has probably been building for
years.
My first experience of IC symptoms was millennium
New Year's Eve. A doctor I went to prescribed the usual treatment, which did
not help. I then found another doctor, one who actually looked in my
bladder. The other doctor had not. That procedure seemed to ease
everything and my symptoms went away for 6 months, until July 2000. After
that time I went on everything to try to treat my symptoms.
IC was not suspected for a while because I had no, and
have never had, pain.
My symptoms were frequency, pressure and urgency. The
urologist was a nice man and would answer all my emergency calls. He
prescribed anything I wanted and tried everything, including starting me on
Elmiron. It all made me worse. He did a cystoscopy and discovered IC. No
ulcers, but an inflamed dome of the bladder. He never talked to me about IC
and never even spoke to me after the surgery. He just said I would be OK.
I was desperate. I was going to my local pharmacist
almost every day for something new, and I asked her if she knew of anyone
else with this disease. She did. She said she knew someone who had told
her that she had found a person who had helped her. (That person was Angie
interviewed on this site). The pharmacist got the number of the person who
had helped her for me. I would also like to tell you that this person came
to me through two other avenues. I was also referred to her by a friend of
mine who is studying acupuncture and knew that she dealt with this disease.
I also found her from an online referral.
My practitioner's name is Matia Brizman. I feel my story
needs to be told, because people need to know about Matia and what she is
doing.
I had never believed in alternative medicine and I have
pooh-poohed it in the past. I am a straight down the line traditionalist
and have always been happy with Western medicine, especially since I had a
couple of serious illnesses and have been helped successfully by Western
medicine. The minute I went to Matia I got off all medication which was
making me worse and just followed her instructions to the letter.
Matia is the most amazing person you could every wish to
meet, especially for us ICers who have been suffering so badly. She
understands IC like no one else, and her knowledge of both traditional and
classical Chinese medicine and how to apply it based on symptoms is second
to none. Matia is committed to helping patients with IC. She is passionate
about it, compassionate and is dedicating her life to helping patients
overcome it. She treats people all over the world, but I feel extremely
lucky that I am in the same city as her, Los Angeles. What a resource!
I think many, if not most of us who have this disease,
have a very high amount of candida and bacteria. She had me tested for
that. I was extremely high in yeast and had some bad bacteria. I also had
chronic fatigue syndrome several years ago, which is another ailment that is
connected with yeast. It took me a year to get over that. At that time I
did nothing and it went away on its own.
The main focus is to ease the patient's discomfort and
kill the “uglies” - yeast and bacteria, while building strength so that the
body takes over the fight. This is done creating a mixture of herbs for the
patient. Basically your body builds up an immunity to any one medication.
If you introduce multiple entities it gets confused and can't fight them
off. Each one of us is different and Matia is constantly changing the mix
for each patient as she carefully watches their reactions. I am extremely
sensitive to everything. Matia knows exactly what is happening and makes
adjustments accordingly to help us make it through the process as
comfortably as possible. Herbs that might bother you at one stage might be
just the right mix later on in treatment. It is amazing, and I have learnt
a lot about Chinese medicine going through this and have developed a great
respect for it and Matia. She truly knows her stuff.
Part of the process is to strengthen the kidneys, and
again you do that with herbs. The main part is an extremely strict diet. I
did not drink anything but water or eat anything but meat, fish, chicken
etc., eggs, butter, a yeast-free bread, and Provolone and Munster cheese for
7 months. Occasionally I had potatoes or rice but I tried and avoid them to
keep the carb count low. Basically, the main focus of the diet is to
eliminate yeast and keep irritants from the bladder.
Acupuncture is the icing on the cake. I always felt good
after that, but it is also very powerful and can open things up. Matia does
different points on different people according to their tolerance level. It
is a fine art. However, it is not necessary for a person to get
better. Many of Matia's patients are long distance and do not receive
acupuncture.
If there were a quick fix I would be the first to try it.
I would be running. There isn't. This is an extremely healthy and proven
successful alternative. Everyone comments on how good I look, probably from
the herbs since they are very nourishing. Herbs in the hands of a master can
be a powerful tool. Matia is that master.
At one point I retook a test to see how I was doing with
the candida and bacteria. I showed no yeast growth at all and my bacteria
count was completely normal.
I am now eating almost normally. The only thing I stay
away from is any kind of processed sugar. I am eating fruit and don't pay a
lot of attention to what I eat in restaurants now.
I have asked Matia if you have to believe in this and she
says you don't, it will just happen. Everything she said along the way has
happened - slowly for me, but it happened. Before I started with her I was
sleeping in the bathroom and thinking that life was definitely not
worth living. I have been to Europe twice and Australia and I travel all
over the U.S. I no longer take herbs for my bladder and I would say I am
practically symptom free. I even started a new career in real estate,
not exactly stress free. IC no longer rules my life.
This disease was a long time building up so I was prepared
to give it a long time to work its way out of my system. Anyone considering
this route, and I truly believe you should be open to it, must have
patience. Some get better quickly, but for others it can take some time.
I don't know any one of her patients who doesn't bless the day they
found her.
I am trying to get the word out that you do not have to
suffer the rest of your lives with this disease. Matia has a logical,
proven treatment to relieve the suffering of IC patients. She saved my
life.
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