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Adrienne - Florida.....When I was diagnosed with IC in August of 2001 I thought my story began then, but now I realize it started years ago. I had always had difficult periods so when I was seventeen I was put on birth control pills to help with my heavy bleeding, cramps, and headaches. That was 15 years ago. Nine years later I was told I may have endometriosis so I had a laparoscopy done which proved that I did have minimal endometriosis. Right after the laparoscopy I thought I had a urinary tract infection. I had had so many of them before that I just thought that was what it was. I was put on Cipro and it didn't go away in one day like the times before. After taking the antibiotics for seven days the pressure and urgency hadn't gone away. This time I just waited for a week or so without anymore medications and it went away on it's own. At the time I had no idea what it was, but since it went away I just forgot about it. Shortly after that I was put on the pill continuously to avoid having my period, because I had so much pain during my period from the endometriosis. I asked and asked if this was dangerous. Over and over I was told it wasn't. For six years I was on the pill continuously without having
a period. In those six years I was the sickest I've ever been with headaches,
severe allergies, and of course urinary tract infections. Needless to say I had
taken all kinds of antibiotics, had steriod shots for different things, and was
putting synthetic hormones into my body over and over again...and not having a
period to top this all off. I should've known this was bad for me. In May of
2001I went off the pill completely and that's when I started feeling the agony
of IC. I had pressure and urgency all the time. I urinated often, but not a
lot of urine came out. I again thought I had a urinary tract infection. I took
Cipro again and it didn't help at all. I thought I had something else. So, I
went to another doctor. She thought I had a yeast infection. By the way, all
of these tests had come back negative. But, they kept giving me antibiotics. I
kept taking them thinking that they knew best. I finally told my gynecologist
that I needed some serious care that something was wrong and it wasn't in my
head. He took me seriously and sent me to a urologist in the end of July of
2001. Off I went to the urologist thinking this doctor was going to make me
better and take this awful feeling of pain and constant urgent feeling of
urinating away. The uro said he thought I had IC and wanted me to start on the
IC diet. He also wanted to set up a cystoscopy and hydrodilation. I agreed
without doing any research first. That was a dumb move for me, because these
two procedures actually made me worse! After this surgery I had pain in my
bladder and my urethra. Pain I had not had before and it was terrible!! It felt
like something was grinding in my urethra and my bladder kept me up at night
with pain, which I found out later....the pain was from my bladder
having spasms. I went back to him and he was of NO help at all. He just put me
on Detrol LA and told me to stay on the diet and just try to not get stressed
out. That was it. His only advice. I even got a second opinion and he said
the same thing. If you have IC and you're struggling with the pain, the depression, the pressure, the sleepless nights etc.., please listen to me when I say that nothing else had helped me and no other doctor had any suggestions that were worth trying. Matia is very caring and patient. Just what a medical professional should be and she alone has diminished my IC symptoms along with other ailments I had and I know in the end I will be free to live my life without the symptoms of this dreaded illness, thanks to her. Update
Here's an update: I'm now a year and a
half into treatment and am happy with my progress! I had extreme fatigue
where I would not be able to even stand in my kitchen and cook and now I have
enough energy to teach kindergarten all day long and then move furniture
around in my classroom afterwards....heavy furniture I might add! That leads
me to my new found strength! I have been so incredibly weak and am now able
to not only lift everyday things without struggling, but like I said move
furniture and work out using light weight or no weight on machines three times
a week or so! These are HUGE gains for me!
I'm not always feeling 100 percent where fatigue is concerned, however I have MANY more less fatigue days and moments than before and MANY more energetic days now. As far as my bladder goes, well I don't have very many symptoms anymore. If I have endured a lot of stress, worry, anxiety, etc., or have a lot of emotional die off then I have bladder symptoms....same kind of thing: pressure, feeling like worms are crawling around in there, even level 1-2 pain which only lasts for a day and sometimes not even a full day, and just plain old discomfort. But, if I'm rolling along in life doing quite well where stress is concerned then I'm feeling nothing in my bladder! I don't go to the bathroom very often anymore I think I only go about twice a day during a work day where as before I was having to go every hour and a half and when I began treatment I was going constantly. During the night I get up once to go to the bathroom and I even have nights here and there where I don't get up at all!
I'm still going through some tough die off, but
I physically feel a million times better and ....I am beginning to feel NORMAL
again.
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Disclaimer: The
purpose of this site is for information only. We in no way intend to offer
medical advice. This is not the official site for BOMA-Med. This
site has been developed by patients of Dr. Brizman, because of their faith in
her work, the belief in the effectiveness of her treatment, and willingness to
inform others of an opportunity to recover from the ravages of Interstitial
Cystitis. |